Our simple aim is to raise over £10,000 to help DebRA carry on the good work and both find a cure for EB and to help treat sufferers.
Real Progress
For the first time ever, researchers have successfully used gene therapy to correct patches of damaged skin on an EB patient. Further clinical trials are close at hand and there is a real chance that a cure is possible but we have to continue the momentum and that takes money. This is by no means the end of the journey but we are on the edge of something great.
The burning ambition of the charity is to one day close, as this would mean that the world had found a cure for this debilitating disease. Let's help this charity reach their ambition!!
Who are you helping?
What will your money bring?
- £15 could provide 5 babies with special mittens to prevent them tearing their own skin when they scratch
- £25 could pay for one hour of research to find a treatment for EB
- £50 could fund two additional home visits, which is critical for those finding it difficult or impossible to travel
- £100 could pay for an essential changing unit required during the frequent and lengthy dressing changes
- £300 means a family could enjoy a week's holiday in one of DebRA's specially adapted holiday homes
- £500 could pay for a home air conditioning unit – essential apparatus to keep the skin cool
- £1,000 could help fund the welfare needs of a child with EB – providing a range of equipment such as special bed linen, food blenders, adapted buggies and much more
- £6,000 could evaluate potential new research projects at an international level
Please give all you can and let's change lives together
